GaleB
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For Virginia
All the best for you during the swallowing study tomorrow V.
I hope you find the answers and help you need.
God Bless you my Dear Friend.
Gale
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7/28/2008, 8:24 pm
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dtyree
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Re: For Virginia
God be with you Virginia
--- Bark less, and wag more often.
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7/28/2008, 8:52 pm
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Joleen711
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Re: For Virginia
Lord, we come together and lift up Virginia to you dear Lord. Lord wrap your comforting arms around her and keep her safe as she drives to see her doctor. Lord, please give the doctor wisdom, clarity, and knowledge of what is causing Virginias swallowing problems. Lord give the doctor clear direction on what he needs to do. Also give V. peace and perseverence to continue to run that race you have set out for her Lord. Thank you Lord for Virginia. Her faith, wisdom, spiritual gifts just amaze me. She is a wonderful spirit led child of God. Lord, thank you and please give her rest when she returns home. Its in your Son's name we pray, Jesus...thank you, Amen
Virginia, we love you and pray that your day goes well and that you will have some anwers soon. (((((Virginia)))))love, Joleen
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7/29/2008, 11:04 am
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horseshadowrider
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Re: For Virginia
Well, it was interesting! Two very nice young women were the speech pathologist, plus they brought in a doctor. They put barium paste onto all kinds of food, applesauce, bananas, crackers, turkey, etc. And watched thru flouroscopy the food go down.
The end result is that I'm swallowing fine. It seems the opening to the esophagus is slow to relax after the food passes and they think this might be what I feel and am taking as food.
I also took a barium pill and swallowed that and felt a bit like the pill was still in my throat, like I always do, but they said the pill went down really fast and they followed it all the way down to my stomach.
They really don't know what it is up. They said b/c I've been dx'd with brainstem compression, that I will always have the possibility of swallowing problems developing. And They also understood that if I had gone out and done something that would have fired up the BS compression, that the test might have come out differently.
I took a pain pill about an hour ago and just now am I feeling like that feeling of a pill stuck in my throat is starting to go away. It makes sense that it could be muscles in there that are not exactly spasming, but are staying tense and giving me that sensation. I guess that's the gist of what we found out today and I am glad too that I'm not in danger at this time of aspirating.
So...that was interesting! I told them all about Chiari which they knew nothing about and they were hungry for knowledge. I had two biz cards for CCI which explains CM and gives the website for CCI for them to go and learn more info, they were quite happy to get them. They are young and eager to learn.
Praise God. It's good to know that it's not actual food that is sticking. Also, when I asked what they thought about the time when I had such a lump in my throat, it felt like a bolus of food, and my vision darkened and I felt light headed and got tingly etc, what did they think of that? And one said, "Perhaps you had stopped breathing." And I thought she was right on as I do have that issue of stopping breathing (after expiration) and having to get things going again consciously.
So, I felt they were a blessing, it all only took an hour and I felt okay about it all when I left.
thanks so much for the prayers.
love, V.
--- Virginia
4 plc fracture of the C1, Tethered Cord, (acquired chiari and elongated brainstem resolved by Tethered Cord surgery); atlanto occipital dislocation and cranial settling all due to equestrian accident,
2004. CC Fusion upcoming.
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7/29/2008, 11:35 pm
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Joleen711
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Re: For Virginia
Virginia,
I am so glad that it went well for you too. I bet it does feel good to know your not aspirating. Were you able to rest after you got home? Did it tire you out?
I pray you get rest tonight and that tomorrow is another beautiful day for you. Thank you for updating us. It was a pretty good day overall
Gentle hugs, love, Joleen
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7/29/2008, 11:49 pm
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horseshadowrider
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Re: For Virginia
Thank you, Joleen. Yes, I did lie down for about an hour and a half. I am finding that I simply HAVE to lie down every afternoon in order to get the weight of my head off of my spine. It seems to help a lot. I didn't fall asleep, I just read, but it really does help me to be able to finish up my day.
Now, I'm off to the recliner to watch American's Got Talent!
thanks Sister!
love, V.
--- Virginia
4 plc fracture of the C1, Tethered Cord, (acquired chiari and elongated brainstem resolved by Tethered Cord surgery); atlanto occipital dislocation and cranial settling all due to equestrian accident,
2004. CC Fusion upcoming.
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7/29/2008, 11:54 pm
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