horseshadowrider
Head Administrator
Global user
Registered: 03-2008
Location: Washington state
Posts: 1957
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Some other message boards
Some of you are parents of children with these conditions, and so here is the ChiariConnectionInternational Parents' Group message board (though I hope you will still seek help here!)
http://health.groups.yahoo.com/group/CCIparents/messages
Another great group is the TRifecta Group for people with Chiari, EDS, and TC.
http://health.groups.yahoo.com/group/ACM_EDS_TSC/messages
And another great group is one for the Pacific Northwest:
http://health.groups.yahoo.com/group/Chiari-Pacific-Northwest-USA/
These latter groups are owned by my friend Charnel, who also moderates the Parent's Group. She is going to post our Healing Friends site on her groups, and of course, I wanted to reciprocate the favor! The more the merrier!
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Virginia
4 plc fracture of the C1, Tethered Cord, (acquired chiari and elongated brainstem resolved by Tethered Cord surgery); atlanto occipital dislocation and cranial settling all due to equestrian accident,
2004. CC Fusion upcoming.
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4/20/2008, 2:35 pm
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